MovieChat Forums > Soul Surfer (2011) Discussion > How do people with disabilities feel abo...

How do people with disabilities feel about this movie?


The reason I am asking this is that I technically have a disability, but unlike the main character, mine is an invisible disability, so people wouldn't be able to tell I have health issues just by looking at me.

I realize this film is biographical, but I personally couldn't enjoy this movie because I know that ignorant people will see this movie and think that if Bethany Hamilton can live a normal life and still do what she loves, then I can too ... after all, I'm not missing an arm and she is!

So, if you have a disability or even if you don't and would like to share your opinion of the movie in light of this topic, I'd like to read your thoughts.




I also found this link about how people with disabilities feel about these types of films if anybody would like to share their opinions on it:

http://dayalmohamed.com/wordpress/2012/05/30/cripple-porn-wheelchair-fishing-and-disability-as-inspiration/

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Foremost, I'd like to say that it's cool you brought up this topic. (Plus, it's finally something other than religion.)

Anyway, I didn't mind the aspect of the movie at all. In fact, I even related to it during at least one scene.

Diverting for a moment... I do have a physical disability, but it's nowhere near as obvious as a missing arm.

Getting back to the main topic... The scene was the supermarket parking lot, and it was so clear for me and stuck out like an over-sized head. It was the point where the young girl asks her mother "what happened to [Bethany's] arm?" Then, her mother apologizes and they walk away.

It hit me because I've heard those whispers far too often, even though my disability isn't blatant. From the one perspective, I don't blame children for asking such questions. They really don't know better. HOWEVER, when adults do, it pisses me off.

That... And when someone says "I understand." I won't go into details because it infuriates me something fierce, but suffice it to say, it's horrendously ignorant and tactless behavior.

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W-a-a-a!..W-a-a-a!..How do you like it?!?..W-a-a-a!

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Thanks so much for responding. I thought people would either ignore the question or give rude replies.

I remember being asked questions by kids too. They thought it was weird that I lived with my parents and didn't work, and they wondered what I would do all day. That hurt a lot.

As for adults, I mostly got people who try to give me advice, which really infuriates me. It implies that I'm currently doing something wrong, and the thing I SHOULD be doing is obvious enough that I don't even need a doctor to inform me of it. They act as if I would be fine if I just followed regular health advice that everyone should follow, thus implying that I don't REALLY have anything wrong with me.

One of the reasons I brought this up is that my sister once dismissed my challenges because Terry Fox could run across Canada on one leg. Again, I'm not missing a limb, and people who are can obviously overcome THEIR challenges.


Anyways, thanks for responding Odie33. I'd love to read more thoughts.

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One of the reasons I brought this up is that my sister once dismissed my challenges because Terry Fox could run across Canada on one leg. Again, I'm not missing a limb, and people who are can obviously overcome THEIR challenges.

As I mentioned, this situation is due to others feeling they "understand" your situation. Now, sure, they may be able to relate in little, minor ways, but it's nowhere near an actual understanding. And it's the mindset of "knowing" what you're dealing with that they feel they know your needs as well or better than you. Unfortunately, my mother is VERY much that way.

For an analogy.... There are meetings where relatives of completely blind children go and they get blindfolded. It's an activity which is supposed to imitate what the child goes through. Irritably, most adults begin to believe such. However, being blindfolded is nothing like actually being blind. Sure, you can't see anything, but you'd need to glue the blindfold to their face in the middle of the night, so they wake up confused and genuinely worried that it's permanent, for a person to have the slightest clue. Another quick example... It would be like me using ear plugs all day and pretending I know what it's like to be deaf.

Regretfully, none of this is going to help you. Although, hopefully, it helps you get a better idea (but don't say you understand their perspective either).

Ultimately, you need to learn to tolerate and agree to disagree (sort of).

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W-a-a-a!..W-a-a-a!..How do you like it?!?..W-a-a-a!

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I think you hit the nail right on the head. I would be interested to know if most people with disabilities experience this with others, especially if it happens to those with all different kinds of disabilities. If there are differences in the experiences, I still would like to know, but I haven't found a lot of information on this.

I assumed people acted the way they did for the same reasons you suggested, but other reasons occured to me as well.

Still, I'm curious about what people think of how people with disabilities are portrayed in the media and whether or not these portrayals influence how others treat them.

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Actually, I think 'I understand' is preferable to 'I know how you feel'.

People are often trying to be supportive and helpful. I wouldn't diss them too quickly.

I've just come out of a very traumatic couple of years. I can handle people saying 'they understand how I feel'. To me that is them saying 'I can put your situation into my head and empathise with your struggle'. For them to say 'I know how you feel' is saying 'I can put your situation into my head and know how it is affecting you'. No... you can't. Even someone who has experienced EXACTLY the same thing CANNOT know how another person feels. They can, however, have an understanding and an empathy.

I'm interested though, what is it that you want someone to say to you?

SpiltPersonality

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I have 4 bad discs in my lower back. I also have battles with depression (all issues from a car wreck). I could probably whine enough and get disability and for what? to give up~this movie is an inspiration to what we all should do. There are people with carpal tunnel that won't work yet we have the blind working or doing for themselves. It's about making the best of a bad situation instead of the "label" disability...

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Right or wrong, children and kids are curious. True story .... I was taking a three day seminar and the instructor had one arm and he had one of those really old hook metal arm/hand. There was about 20 of us Adults in the class and the first thing he said after introducing himself is that he was going to tell us what happened to his arm. The reason he did this was because he didn't want us to stop focusing on the content of the course and think about his missing arm. The funny part is that all of us admitted to thinking "hmmmm ... I wonder what happened to him." It was a good strategy on his part, cool Teacher, cool course.

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Right or wrong, children and kids are curious.

I would go with right, at least most of the time. Knowledge is gained through trial and error.

It was a good strategy on his part

Absolutely, because, as you stated, it's an aspect/trait that most become obsessively captivated by, thus better to address it.

P.S. To clarify my earlier comments... I don't actually become angry if someone makes a query politely. However, whether polite or not, I am uncomfortable with questions simply due to the fact that I can never create a description which could possibly provide an understandable perception. So, it feels awkward and futile.

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W-a-a-a!..W-a-a-a!..How do you like it?!?..W-a-a-a!

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I was really bothered by several of the scenes in the movie where everyone around her is trying to comfort her, give her advice, tell her it'll be better, etc. Fundamentally all of this puts her severed arm at the pinnacle of importance. In the scene where she's going out on the waves for the first time and her parents keep telling her ways she can adjust her technique to compensate, I was yelling at the TV "leave her alone and let her surf!"

My take on disabilities being visible, how to treat people, etc. is that EVERYONE deserves consideration for whatever they're going through, regardless of whether they have something recognized as a disability by them or others, deserves to be taken seriously when they say something is difficult, for others to do their best to treat them how they want to be treated, to believe when they say something isn't a big deal.

On the flipside, people have reactions to things like seeing a person with only one arm, and need to be able to talk about what's coming up for them without it being cast as hurtful or wrong (this is different than someone having those things come up and then treating the person like they're weird, sub-human, helpless, etc.) So for example the scene in the grocery store parking lot where the child in the cart asks the mom what happened to her arm, the mother could have said, "well, let's ask her" or at least answered that she probably lost it in an accident, rather than acting like it's a taboo subject.

Personally I notice various reactions to people's appearances and behaviors and would love to be able to talk about what's coming up, but usually keep quiet because I think it'll be taken negatively as if I'm attacking the people. I've had a few instances where I've been able to talk to the person about what's come up and it's been respectful of them and they have been appreciative of me being open and attempting to work through these barriers. I see these things that come up as indicators of unresolved things in my own life, for example fear of losing a limb, etc.

When I'm talking about my own life and struggles I face, I find it generally unhelpful when people tell me that they understand, that I'm not alone, etc. These are barriers that prevent them from continuing to listen and hear further details about what I'm experiencing. These are someone else bringing in their own ideas of what I want, rather than just listening for what I express that I want from them. It's especially frustrating when I say that I don't want these from them and they act like I am denying that I really do, or don't want to admit it. It's like, what's your real goal here, because it's definitely not my well-being! It's refreshing when someone listens until I'm done, then asks probing questions and is never overly confident that they fully understand. This always leaves the door open for me to say more in the future.

I think it's great when people ask questions about someone from a place of simply wanting to know. When they want to ask but shy away, this sends the message that the person couldn't deal with being asked, that there's something wrong with the subject that it can't be talked about, etc. When people are candid with me about questions they have, I might experience it as threatening since I don't know their motive at first, but when I see it as genuinely inquisitive, I enjoy the clarity I get from coming up with a good answer.

Thanks for this topic; it goes great within the context of the movie! Love the blog link as well. That kind of "wow, that person did that evey though they can't walk!" is like the common "you play well for a girl". Uck. I'm a human being, just like you, and the only way you can know what is an achievement for me and what is just daily routine is to ask me, since only I know the struggles I face. And I don't need (or want) your commendation for how well I'm doing, about how brave I seem to you based on your assumptions.

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Thanks for responding!

I’m glad you mentioned that you would welcome questions. Originally, I said the same, and I was determined to be open and honest about my health issues because I thought it was a really great way to start erasing the stigma of illness and disabilities. At first people seemed to think it was strange that I was sharing the information with them, but I assumed that was expected.

Soon though, I started to learn why people aren’t open and honest about this stuff. It seemed like so many people in my family – and especially one of my friends – had some kind of judgment about what I did wrong to end up in this predicament, what I AM CURRENTLY doing wrong that is stopping me from getting better, or what I SHOULD do to improve my condition.

I figure that most of these comments are from ignorant people who don’t know any better and probably need someone to feel better than, and I also notice that these comments reveal a lot more about them than about my health. Still, I can’t help but think that if these people feel they are in a position to give me medical advice even though they know they don’t have a background in medicine then they must greatly look down on me. Why else would they think they know more about my condition than I do?

I still intend to be honest about my health issues, but I think I need to be prepared to be much more firm with people.

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People's non-medical advice on medical conditions reminds me of how there will be some news story about say NASA and intelligent people acting like they know better than the people who work there, even though the people who work there know far more about the situation. Though, it's not that people don't know about things they comment on for me, it's that they even take the approach of trying to give advice (and judgment along with it). Advising someone is only one of the many ways one can relate with another person. There are many ways where you're just there for the person, not trying to change their current feelings or direct them to talk about something else or change how they view something. I think people's actions are affected by how others respond, and given that most people's responses are aimed at changing people, people largely do things to accommodate this. Thus, it's a gift for someone to accept someone else exactly where they are.

In the context of the movie, it would be her parents just listening to wherever she was at while in the hospital bed, rather than trying to put a positive spin on the situation. Sure, she might be down at first, but allowing her to explore this would lead to inner strength and acceptance that comes naturally, without anyone coaxing it out of her. Of course, the parents couldn't do this because they had things going on for themselves as well, probably a sense of loss of things she could do in life, and also an avoidance of being present for suffering and related parts of the emotional palette.

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As a parent of a 2.5 year old wheelchair bound boy born with Spina Bifida, I don't think living a "normal life" is out of reach. The most crippling body part is the mind, and if it is crippled, an able-bodied person won't have a "normal life".

"Ignorance" isn't the driving force of a can-do life. Faith, desire and determination are.

No offense, you sound a little bitter. This movie isn't about you. It's about Bethany and her determination to live the kind of life she wants to live.

You can do what you want with your life, two arms and all. If your disability is hampering your progress, then you do the best you can. That's all anyone can ask for.

I don't know who you thing you are, but before the night is thru...I wanna do bad things with you!

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This is an interesting thread and I can relate to a lot of things that have been posted here. I had an accident at work and lost the use of my right hand. And I'm right-handed, so it was a blow. My boyfriend who I lived with for four years previous to the accident said he didn't want a "cripple" so I wound up being homeless. And after reconstructive surgery and a lot of physical therapy, I got a lot of use back in my hand. It still hurts, and sometimes I struggle with things that were easy before.

And it is kind of a before-and-after thing. There's the person you were before and the dreams you had, and then there's the person you are after. Bethany was able to go back in the water-devastating as her injury was, she was still able to do the thing she loved the most. I got the sense that if she hadn't been able to go back to surfing, her injury might have been more difficult for her to deal with. Everything is relative. There are people who climb mountains without legs, and there are world class runners who are blind, and there's Bethany, who surfs with one arm.

Sometimes I really struggle with something, or I'm really hurting, or someone is rude or insensitive about something I "should be able to do without so much trouble" and it's really aggravating, but I also could relate to the idea that you have control of your attitude. And I'm a Christian too, so I do pray and ask for God's help, but I also feel that a lot of what I do with myself is up to me. I can whine about the things I can't do, or I can do the things I can, the best I can. And most days, I'm pretty happy with myself. I'd be happier with two good hands, but I'm still pretty happy. It really is an inward thing-you just can't let other people or outside factors control you. They may affect you, and there may be days you just can't get through without feeling very sorry for yourself (and I do have those days from time to time!) but I do think it's possible to do a little better every day and feel good about things.

http://thinkingoutloud-descartes.blogspot.com/

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This is an excellent, though deceptively complex topic.

I found the movie inspiring. I can't imagine being a 13 year old who loses an arm, so from that standpoint alone I tried to put myself in her place. Given her age, fitness level, lack of other illness/disability, her strong family and friends' support, her passion for surfing (that existed before the shark attack) - she was determined to give it her best shot despite her particular disability. I enjoyed seeing that, very much.

To take her inspiring example and apply it across the board (pun intended) to every person with a disability is oversimplifying the usually complex nature of others' disabilities (including the social &/or familial support factor) as well as dishonoring Bethany. This is *her* disability. It is uniquely hers, as much as her identity.

I was diagnosed with MS over 5 years ago. I would no more take an inspiring story of someone with MS climbing Mt. Everest and using it to try to "inspire" others with MS disabilities to do the same. MS as an illness is all over the map in terms of what is affected and its severity, and can cause both visible and invisible, variable levels of disability. So yeah - when someone takes the story of Ms. X who "has MS" but is incredibly active and "not letting her disease win" by running marathons or climbing Mt. Everest, I can only think this "You are simply lucky - your disease course is relatively benign; you are going through a welcome period of prolonged remission/wait till your next relapse; and perhaps you've been misdiagnosed and don't have MS in the first place." The endless variable factors all of us cope with in just getting on with life will naturally extend to our particular challenges and disabilities.

I went through a harrowing flare (for *me*) a few months ago. My disability was obvious. It resolved itself after a number of weeks and now I look "normal", though hidden disability such as fatigue and pain are not so obvious.

I will readily admit that the repeated questions from well meaning acquaintances who didn't know about my diagnosis became tiresome, but I knew they were well-intentioned. I know many people in my support group who - from my perspective - have far more disability and difficulty from MS than I do. I admire them, but I don't wish to patronize them because I'm beginning to understand how that feels. "No, I'm not *so brave*, I'm just a person like you, trying to live a meaningful life..." while at the same time understanding that most people don't mean to be patronizing or weird about it.

Still learning - but it's a lifelong process, ain't it?

Whatever our disabilities, my deepest hope is that we can show each other empathy, kindness, compassion, admiration and encouragement - just as we would in any other facet of life.

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I have a very severe "invisible" illness, that being ME/CFS and I found this movie very inspirational and really enjoyed it.

You sounded very bitter and probably in need of a good counsellor to deal with your emotions over it. Believe me Ive been treated terribly at times with this illness due to it eg Before receiving it, I was rejected for disability pension three times even thou I wasnt even able to stay seated during assessments as they didnt believe me and was on the floor. I even choose to go to jail for a while for something I was innocent of instead of accepting bail till the case was heard as I couldnt get disability home support at that time and couldnt even cook for myself so was very often going without meals. Ive been terribly disriminated against for having an invisible illness that most people dont understand can be extremely severe.

My illness not being seen (unless Im nearly having a near seizure from it, tremoring or gone unconscious or left unable to talk properly as Ive got that exhausted from doing something which is hardly doing anything at all), that doesnt stop me seeing good things in life even if they are very small things. I was marvelling at a rose outside of my window the other day, took a photo of it and shared it with all my disabled, homebound/bedbound invisible illness friends online. It was so beautiful.

Sure I cant do what she can (in fact I cant even leave my house without a support worker at my side as I have unconsciousness collapses due to this illness when Im on my feet so cant even do a basic food shop alone!). In fact last time I went out surfing I nearly drowned, I paddled outback and was so exhausted at that point that I got into big trouble. So in my case I did have to quit surfing as it is completely now unsafe for me. I felt soo happy for her, to still be able to live her dream even with a severe disability even if so many people due to so much false info out there, dont understand my own.

best wishes to you
I hope you feel happier in the future and come more to terms with whatever disability you have (I got ME/CFS 17years ago when I was in my prime, in my 20s.. it destroyed all my plans in life, had to drop out of collage where I was studying what I'd always wanted to do, couldnt take care of my own children, couldnt work at all anymore and lost the jobs I loved etc etc).

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I have a disability in all the muscles of both hands and arms, and I found this movie very positive and inspiring. I, too, have had people make comments, such as "Are you drunk?, are you having a nervous breakdown, are you on drugs?". It's very embarrassing and makes me feel very self-conscious. Because my disability affects every single thing I do using my hands and arms, Bethany's positive attitude really spoke to me. Also when she asked her Dad "why did I have to lose everything?" and when she asked her youth group leader "How can this be God's plan for me?" , it made me cry- I have asked both of those questions. I also like the part about it being hard to see things when you are too close to them, and how it helps to "get a new perspective". Since I saw the movie, I have really been working on trying to get a new perspective. I was inspired to do that by seeing Bethany do that, so I think that using her disability to give other people hope is a great idea- she definitely helped me!

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In all honesty, I was irritated with this flick. Even though it was cool That she still doe well despite her handicap, I kept feeling like people were patronizing her because of said handicap.

I read a story about a quadriplegic who learned how to paint with her teeth. Even though that is awesome I kept thinking. Would her paintings be as appreciated if she weren't paralyzed from the neck down?

I have Asperger's Syndrome and I can tell you, it was because of films like these that I had trouble believing anyone who praised me, especially people who knew I had the condition. Fairly recently my dad gave me a compliment on how independent I've become because I make my own appointments. Good intentions aside, getting praised for things that normal people my age do every day made me feel they thought I was stupid.

Another fun story I have, I joined this group for people with physical and mental disabilities who get together and make films. I had to play this homeless punk. The Director, who founded this group told me I was great in the role, but after seeing some of the other people in the group, some who had it worse than me, I wondered what that meant. Good or good for someone with my condition. We managed to get Ted Levine AKA Buffalo Bill from Silence of the Lambs to play a part. After shooting was done, I asked Ted for an autograph, and he said I did a great job. Maybe this was more sincere because he is a professional actor, but who knows.



"We do not inherit the earth from our ancestors, we borrow it from our children"

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We are human, and may stare or even laugh, not understanding the problem. We've all done it at some point, and hopefully, we learn something about ourselves.
I just watched a video on some singing show. A 20yo was depressed and had agoraphobia(?). But she got up on that big stage and belted out 'Hallelujah'.
And it wasn't just that she was shy. She had a serious mental issue. And it's not like getting on stage was the cure. It was just a step. A big one!
At 25, I badly broke my hip. I was in a body cast, and on crutches for half a year. When I was in public, you could sense people looking. We're all curious. They wanted to stare, but didn't want to get caught. And they really didn't want to see me, because it could have been a permanent injury. They also preferred I was invisible. (like I am now, at 60, with women...)
Good luck on your problem. And to all out there. Even we 'normal' people have issues! Maybe lots.

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Are you trying to make being rude and laughing at other people sound more reasonable by putting it as "We are human"? A look at your other comments shows you're willing to condemn people when it suits you, so why not in cases like this? I've noticed that it seems a bit more acceptable to make fun of things like disabilities, but then it's considered "hate speech" to insult race or sexuality. One issue isn't more or less important than the other, yet they are treated so differently.

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